We found out a lot of surgery details at our pre op appointment on Friday. We met with the surgeon who gave us a very detailed play by play of the surgery (I didn't pass out :)) he said that Lilly's procedure should be very straight forward and described all risks in the 1 to less then 1 percent category. Basically she will have a horizontal incision a few inches below the neck from the top to the bottom of the sternum, the hole will then be patched with a gortex patch and some stitches. Overtime tissue will grow over leaving the heart healed and functioning as a normal persons does. He is also going to try to clip and divide her right sided aortic arch to alleviate possible future pressure on the Trachia.
We check in for surgery at 6:15 am on Tuesday morning, there is a 1 hour anesthesia process in which she is put under and hooked up to the various machines, ivs, and monitors for surgery, then surgery will last about 4 hours. When she is out of surgery we will be paged by the surgeon and meet with him to discuss how it went before we get to see Lilly in the icu. Our estimated time line will be 2-3 days in icu while she is still on a breathing tube and mostly still out of it on her pain meds and then moved to a regular hospital room once it is removed with a total stay of about 5-7 days.
Once we are out of the hospital we will be home for 6 weeks while she recovers and her rib cage heals back together...
We are doing good distracting ourselves pre surgery taking fun family outings, we are going to a mariners game tomorrow and having fun letting her walk all over the place exploring new things.
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