Monday, March 4, 2013
Background
This blog is to update our family and friends on Lilly's heart repair progress.
Background: When Lilly was born her pediatrician heard a heart murur while examinng her. While we were in the hospital Lilly's heart was looked at with an echocardiogram (basically an ultrasound of the heart). The test was braodcast live to Seattle Children's Hospital where a cardiologist viewed the pictures and then informed us that she had a large VSD which is 7mm in size. (See VSD post for detailed info on what a VSD means). A lot to take in with a 1 day old newborn baby...
Thus began our relationship with Seattle Children's and our many trips back and forth from Bellingham for checkups until Lilly was 6 months old and we moved to Bellevue. What a blessing as now we only live 15 minutes from the hospital. A typical visit to the cardiology clinic includes an EKG, oxygen, blood pressure and echocardiogram tests, this is followed by a detailed visit to review results with our cardiologists Dr. Bhat and Dr. Chun.
We have known in the back of our minds the possibility of open heart surgery to repair the hole since birth and were informed by our cardiologist Dr. Chun on February 8th shortly after her 1st birthday (after 2 consecutive echocardiograms showing the heart to be enlarged in size due to increased blood flow from the heart having to work so hard to compensate for the hole) that Lilly would be presented to the board of cardiologists on February 25th to determine if Lilly was a candidate for open heart surgery to repair her VSD. We received notice the next day that consensus of the board was 100% and that surgery was necessary and we then scheduled her surgery for April 15th, 2013.
We will be updating this blog daily while we are in the hospital to keep everyone up to date on Lilly's recovery as there is no cell phone service. Feel free to leave comments or email me at aramirez113@gmail.com or pm on Facebook.
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Be brave Lilly... I will be thinking about you and will pray that the lord will put his almighty healing hand on you. I look forward to watching you growing up and astounding us all along the way!!!!! :)
ReplyDeleteLove to all of you! Praying for Lilly and her parents' peace and strength. We are close by, so if there's anything you need during this time, all you ever need do is ask! Always, Laura and Matt Plude
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