Going home today :)

We are cleared to go home today just awaiting final paperwork. Should be out of here around 1pm. She is so ready to be away from all these people touching her. She got this cute little heart pillow for her drs and nurses to sign as a keep sake.

Off the monitors

Lilly is now off all monitors and very active for having open heart surgery about 48 hours ago. It's very inspiring. She had an EEG, X-Ray and echocardiogram today. If all the test come back as expected then she'll probably be released tomorrow.

She's been waving to anyone that comes into the room as long as they don't touch her. It's pretty hilarious!

We can't express enough how much everyone's support means to us. We'll let everyone know if anything else excited comes up.

-Mike

Tubes are out!

Big progress this morning Lilly's drainage tubes were taken out and now she is just hanging out with her oxygen and foot IV. We are hoping that everything will be off of her and switched to intermittent monitoring in the next few hours. Then she can start to move around and make progress toward getting up and walking (hopefully by the end of the day).

She is recovering so fast, the dr. says if her X-ray is clear in the morning there is a strong chance she can already go home tomorrow! She will just need to continue on her tylenol and possibly oxy by mouth at home and mama will have to watch her every second so she doesn't crash while walking.

She has no appetite this morning but she has been snacking on a few goldfish and watching price is right clapping along with the audience. Here is a picture

Out of ICU and on the floor

We just got out of ICU and are on the regular floor now. She is off most Iv hook ups and just has her stomach drainage tube, a lead in her leg in case she needs more morphine and a heart/oxygen monitor. She has chugged down 10 ounces of pedisure today, she was starving. She was awake and playful (although very drugged up) this morning and now she has been sleeping for the last hour once she got her oxycodone dose.

We are expected to be here probably 3 more days. She is expected to get her drainage tube out tomorrow and then be able to get out of bed and try to move around a bit!!

The nurses keep calling her superstar patient doing everything very quickly in the recovery process

Alert and drinking

Lilly started to become more and more aware through the night and is now waking up for periods of time. She drinking small amounts of water and I'm sure would love to suck down a bottle, but the nurse is being cautious on feeding right now. She's doing a lot of whimpering as I'm sure she's sore and cranky, but like before her progress this far has been amazing.

I decided to take the first shift instead of Andrea so she's home resting up for day two. I think I got the better deal out of that one! ;). She'll be back around 6am to relieve me and I'll finally get to have some sleep. Grandma Jennie should be in around 8am to give Andrea a hand. Both of them have been amazing during this process. Couldn't be more proud of my girls!!

If Andrea doesn't give an update when she comes back expect another one mid afternoon.

-Mike

Coming around

Gradually, Lilly is becoming more aware of what is going on around her. She's not liking it, but they've been giving her some anti-anxiety medicine to help while they still have to have her hooked up to so many monitors. She had a bit of a cranky episode while Dad left the room, but who could blame her! ;)

Still on track to get out of ICU in the morning and there are mixed feelings. On one hand it's another step closer to getting her home, but we've grown accustomed to the attention she receives in the ICU. Lets hope we don't have to share a room while in the general area of the hospital!!

They are only allowing one parent to sleep in the room so I'll stick around as long as I can hold out and then come back early to relieve Andrea in case she didn't get much sleep. Lilly will be on pain meds, anti-anxiety and a mild sedative through the night to help her sleep. Lets hope Mom can do the same!

This will probably be the last update for the night so to those that are following - good night. More to come in the morning. 

-Mike

Breathing tube out

Lilly just had her breathing tube taken out and is breathing well on her own. Again, this is before they expected due to her awesome recovery thus far.   If she continues on this course she may get out of the ICU tomorrow morning. She is now off the sedatives and she's sleeping comfortably.

We'll update everyone as things progress.

-Mike